PHEFREE Study

The Clinical Neuropsychology Laboratory at the University of Missouri would like to invite you to participate in a new study that we are conducting. In the study, we will be investigating mental health in people with PKU (phenylketonuria). Our goal is to expand our knowledge and understanding of PKU by studying basic mental health diagnostics such as anxiety.

People who take part in the study will be asked to do a variety of things, including filling out short questionnaires on their phones and completing brief tasks on their cellular devices. We will also ask PKU participants to provide blood samples for phenylalanine measures via the finger prick method. Participation should take no more than an hour each day for 9 days. We also can adjust scheduling of the session to minimize potential conflicts with your work/school schedule.

By participating in this study, you will be contributing to our understanding of how cognitive and mental health can be affected in individuals with PKU.

You will receive monetary compensation for participation in the study. We will be shipping any physical supplies that you will need for participation. Additionally, we will meet with you via phone or by Zoom to aid in your app registration and setup. This study will come at no cost to the participant.

Who can take part?

Individuals aged 18-40 years old who have previously been diagnosed with PKU are invited to join our study. Additionally, we are looking for individuals aged 18-40 years old with no history of PKU or any other major neurological/psychological conditions.

If you would like to participate or if you have any questions, please feel free to reach out to us by contacting the lab by email: cnlab@missouri.edu or by phone: 573-884-8109.

Thank you for taking the time to consider participating in our study.

This study is funded by the National Institutes of Health (NIH) through the PHEFREE Consortium.”